Showing posts with label Stroke Foundation. Show all posts
Showing posts with label Stroke Foundation. Show all posts

Monday, 24 June 2024

10 years on...

 - Dom turned 40!

- We've had three children: all girls!

- Work promotions

- Family holidays

- Dance and swimming lessons

- School pick ups and drop offs

...the list goes on!  Our lives are so very different now when compared to 10 years ago and I'm so happy to say it's not because Dom had a stroke.  Well, if I'm honest, then yes, Dom's stroke has impacted on our lives and continues to do so, but our lives today are different because we've continued to live, to move forward.  

In terms of Dom's stroke survival and the impact it has on his (and our) lives today is not something a lot of people understand, or even remember is a thing.  Dom still has, and always will have, continual challenges with fatigue.  Some things are more exhausting for him than others.  Driving, for example.  A one hour drive to the beach and back can wipe him out for the evening/night and into the next morning.  An interrupted night of sleep (thanks kids!) can take Dom days to recover from.  And I've not always been the most supportive or understanding wife in these times.  Parenting is hard, worth it, but hard nonetheless, and in the moment when the three girls are all at me for three different things and Dom is lying in bed; well, I've been known to lose my mind a little (ok Dom - a lot).  But after the fact, I understand, and I recognise I was overwhelmed in the moment and wanted a partner to take some of the load.  Having said that - I don't think there is a better husband or father out there.  Dom is so kind, compassionate and patient.  He loves me and our girls with all he has, and we never doubt his love for us.  


In the past 10 years, Dom has recognized his challenges post-stroke and developed strategies to overcome these.  Some of the challenges he has had to overcome, and still does on the daily, along with the fatigue, is slight aphasia when he's tired and short-term memory difficulties.  These are causes of frustration for Dom, however, his ability to be resilient and overcome these challenges continues to inspire me.  He has received some work promotions and acknowledgements of his capabilities in his role over the last 10 years that when colleagues learn of his stroke they are astounded at what he can and does do at work.  

I am beyond proud of the man I married.  He is strong, intelligent, supportive, caring, loving and an inspiring stroke survivor.

Happy 10 year anniversary boo...I am so thankful you fought the odds and are by my side today and everyday! 




Thursday, 13 September 2018

4 years later

Each year the anniversary of Dom's stroke gets less recognition from us.  I feel like it is similar to the death of a loved one - its not something you celebrate, it is just something that on that day I think "oh yeah, its been ... years since I lost them - wow thats gone fast", and then I go on with my day.  This year however, June 25 came and went and I didn't even think of the significance of that day.  I was a little busy with our almost 3 year old daughter and our new baby girl.  We welcomed Emily into the world on June 17, 2018.  So I may have been a little sleep deprived on June 25 this year! 

Four years on from that fateful day in 2014 and we now have two kids!  I remember at the time of Dom's stroke thinking that we would never have kids.  We'd been trying to conceive for about 6 months before Dom had the stroke.  And to have those negative pregnancy tests before the stroke, well, I just thought there's no way children will be possible for us now.  Then once Dom had recovered, well I was very unsure whether I really wanted to have children as the chance of Dom having another stroke will always be there, I just didn't know whether I wanted to be a single mother.  Turns out, my desire for children overrode my fear of raising them alone.  I didn't want to get to the point of being too old to have children and look back and regret the choice to not have them just because Dom might not be able to be part of that journey in our lives.  I thought "what if he is still here and healthy when we are in our 40s...I will regret not having kids".  So now we have two of them!  And my god do they keep us on our toes, but we wouldn't change it for the world!!

We were robbed of so much because of the stroke and then the epilepsy, but we haven't let that define us.  We have survived it and we are stronger for it - both together and individually.  I am a hell of a lot more resilient than I ever thought I could be.  I have always said "if you asked me how would you handle Dom having a severe medical emergency that would threaten his life, I would have told you that I would fall to pieces".  But that's not what happened at all.  I held it together.  I wouldn't say I thrived, thats not the right word, but I didn't just survive it, I accepted the challenge and kicked its arse!  I was heartbroken, devastated, petrified, uncertain, determined and hopeful all at the same time.  I look back on what I went through watching Dom go through those horrible couple of years and I am still shocked that I survived, that I came out the other side.  I didn't come out the same person - those couple of years changed me; not for the better and not in a bad way either, but I definitely changed. 

Dom was (still is) my everything.  But I now have the quiet confidence that I would be ok without him if that situation ever arose.  I remember conversations we have had over the years, before the stroke, that I would demand Dom die after me, that I could never handle losing him.  That I wouldn't survive and didn't want to go through that.  I still demand that he not die before me, but not because I wouldn't survive - I am confident I would...but now I just think he owes it to me after all he put me through to wait til I pass before he does.  Fair is fair isn't it? haha. 

So, we are we at now? Well we have two beautiful daughters.  Dom works full time, one day per week from home which helps him to battle and overcome the residual tiredness (thanks stroke).  He drives himself to and from the train station.  He gets up to Grace in the middle of the night, he reads her stories, plays games with her, guides her through her gymnastics classes when he can get to them and teaches her all about the solar system (her obsession - his as well coincidently).  He changes Emily's nappies, has fed her bottles on the occasions she has them (she's exclusively breastfed), he sings her songs, settles her down when she's upset.  Yes, he has some limitations but nothing overtly noticeable to the girls or anyone other than him and I.  He's an amazing father - as I knew he would be.  He hasn't let the stroke or epilepsy take that away from him. 

He is a wonderful husband.  He supports me, encourages me, helps me...he's everything he always was.  Yes, there are some slight changes in his personality compared to before the stroke, but I'm really the only one aware of them and in the past 4 years I have fallen in love with Dom 2.0 as I call him.  Some of the changes in him are a result of the stroke and some are a result of the medication.  I don't particularly care about the cause, or even the change.  Within him I can still see the man I fell in love with when I was 18 years old.  I can still see us growing old together and I look forward to each and everyday in between.  Yes, some days are not great - but I don't think the stroke or epilepsy is to blame - I think there are good days and not so good days in any relationship.  We disagree, but don't fight - we never have.  Some days I think "my god, I'm going to kill you" ...but what wife doesn't have those thoughts? I'm sure he wants to strangle me at times too.  We have a healthy relationship and a healthy outlook on life.  Our work-life balance has changed to life-focused, as opposed to work-focused.  Our girls, health and happiness are our priorities and that's the way it should be. 

 

 




Tuesday, 28 October 2014

World Stroke Day 2014

WORLD STROKE DAY: Wednesday October 29, 2014


Today is World Stroke Day and it is also 4 months after Dom had his stroke!  The journey through rehabilitation and recovery has been long, and at times felt never ending.  The light at the end of the tunnel has teased us by coming closer and moving further away.  Specialist appointments result in a barrage of feelings from anger and frustration to elation and positivity.

Over the past month, through a host of specialist appointments, we have discovered that Dom's stroke resulted in a number of factors aligning at the same time - factors which were unpreventable.  I think this is the hardest part to accept - that we couldn't have done anything to prevent his stroke, and that there is not a lot we can do to prevent another one except ensure he takes his Warfarin.  Its the helplessness that is the hardest to process.

As a wife I want to take care of my husband, look after him, make him happy, love him for my whole life.  Some days it feels like stroke is the dreaded rain cloud hanging over a day of outdoor fun.  Its not something I can forget, seeing him in the hospital - so sick, and me being unable to do anything to change that for him.  I would do anything to switch the roles, to have the stroke so he doesn't have to go through all this.  Although when I think about that properly, Dom would probably prefer it not be me that had the stroke - I can be a moody bitch at the best of times, let alone when I'm sick or injured.

The World Stroke Organisation http://www.world-stroke.org/  is using the 2014 World Stroke Day for their 'I am Woman' campaign:








"The World Stroke Organization (WSO) is calling for immediate action to address the global epidemic of stroke. 
The “I Am Woman” campaign reinforces the fact that while stroke does not discriminate between sexes, women are more at risk of
having a stroke and in many cases are the primary caregiver to an affected husband, father, partner, daughter or son."
http://www.worldstrokecampaign.org/get-involved/campaign-advocacy-brochures.html

 Objectives of the World Stroke Campaign and World Stroke Day - http://www.world-stroke.org/advocacy/world-stroke-campaign

  • Raise awareness on the profound and universal impact of stroke on human life and suffering;
  • Increase understanding of the solutions that exist. Prevention is the most readily applicable and affordable part of knowledge. Key actions must be made to encourage healthy environments to support healthy behaviors.
  • Translate knowledge into action. Transdisciplinary teams must be encouraged to develop expertise and translate evidence into practice. Establish simple but comprehensive stroke units. Stroke units have long proven their worth, even in their most basic form.  And, work towards building a healthcare system that responds to the needs of each individual living with the impact of stroke.
Generate a movement that stimulates collective responsibility and action. Families, community-based groups, professional societies, national governments and the international community all need to support the delivery of programs and services to all persons affected by stroke, as well as fight for better access to basic health services.
- See more at: http://www.world-stroke.org/advocacy/world-stroke-campaign#sthash.Q6Ft89ul.dpuf



1 in 6 people will have a stroke in their lifetime.  Women are at greater risk than men of having a stroke, but women are also more likely to be carers of a stroke survivor.  So today, World Stroke Day, take a moment to think about your loved ones and how 1 in 6 could effect you and the ones you love - what are you going to do to prevent becoming a stroke statistic?

Unite with me and Dom in the fight against stroke.  Contact me if you would like to purchase a Stroke Solidarity String or purchase directly from the Stroke Foundation - funds raised are donated to the Stroke Foundation.




I am woman...stroke affects me.  But I am thankful for the second chance Dom has at life, we will not waste it.  Help me raise awareness to fight stroke by sharing this blog with everyone you can.
We are still raising money for the Stroke Foundation via our Everyday Hero account; please donate if you can, and share this link so others can also donate: 

Our Wedding Day - January 7, 2012.